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Source: By Hannah Scissons, Saskatoon StarPhoenix
SASKATOON — Clinical trials of the controversial liberation treatment for multiple sclerosis should happen immediately, says a former University of Saskatchewan researcher who proposed an eerily similar theory more than a decade ago.
Bernhard Juurlink published a hypothesis in 1998 that MS is related to decreased blood flow in the brain and spinal cord.
“It was very difficult to get anyone interested in this idea — the idea was easily testable by, for example, looking for blood flow in white matter in MS patients,” Juurlink said in an interview this week. “I tried to first interest clinical [...]
SOURCE Society of Interventional Radiology
Position Statement in September Journal of Vascular and Interventional Radiology Outlines Society’s Stance as It Actively Promotes and Expedites Needed Research, Recognizes Potential Value of Interventional Treatment Options for Vulnerable Patients
FAIRFAX, Va., Aug. 26 /PRNewswire-USNewswire/ — Recognizing that venous interventions may potentially play an important role in treating some patients who suffer from multiple sclerosis — an incurable, disabling disease — the Society of Interventional Radiology has issued a position statement indicating its support for high-quality clinical research to determine the safety and effectiveness of interventional M.S. treatments. SIR’s position statement is endorsed by the Canadian [...]
by Ccsvi Transverse Myelitis on Wednesday, August 11, 2010 at 12:38pm
Dr Sclafani has kindly answered to the following question I posted him in thisisMS fourm:
Dear Dr Sclafani,
Have you read the German and Swedish studies re Chronic Cerebrospinal Venous Insufficiency commented in the Wall Street Journal?
http://online.wsj.com/article/SB10001424052748703787904575403160155710380.html
Did these studies use the doppler ultrasound with the right protocols?
Rox
_____________________
Dr Sclafani’s response
11 August, 2010
It is regretful that Drs. Doepp and co-authors’ attempt to reproduce Professor Zamboni’s discovery of a link between multiple sclerosis and disturbance of the outflow veins of the brain and spine has been unsuccessful.
It is particularly unfortunate that the authors’ misunderstanding of [...]
Source: Guy Knight, Edmonton Journal
I enjoy reading Paula Simons’s column and respect her judgment. I was shocked at her comments on MS research.
She describes research into CCSVI and the liberation procedure as “running down blind alleys” and chasing “Zamboni’s unicorn.”
Clearly Simons has made up her mind about the value of both.
Alberta Health stated in a February release: “further independent and controlled studies are required to prove, discount, or better understand Dr. Paolo Zamboni’s study results.”
Simons is against such research being done.
She cites a recent German study to prove her point, yet one of the [...]
But B.C. won’t follow Saskatchewan in funding clinical trials
Source: Cindy E. Harnett, Times Colonist July 29, 2010
“I think it’s fantastic and I’m really proud of Saskatchewan for being a leader in Canada, and I really wish B.C. would follow suit,” said Grice, 33.
In announcing the funding, Saskatchewan Premier Brad Wall called the so-called “liberation” procedure an “avenue of hope” for patients stricken with the debilitating disease.
Wall said he plans to raise the issue at next week’s Council of the Federation meeting with other provincial and territorial leaders, but is willing to come up with funding [...]
ILFRACOMBE MS sufferer Jayne Morrow and husband Dave are hoping a pioneering new treatment will help ease her condition.
Source: dave.tanner@archant.co.uk, Devon24
AN Ilfracombe mum of three with multiple sclerosis is calling for the NHS to recognise a radical new treatment which has given hope to millions of MS sufferers worldwide.
Jayne Morrow, 42, says it is unfair she will have to spend £5,500 and possibly travel overseas for the treatment she believes could ease her condition.
And there would be many others who could not raise the money, she said.
“The health service in this country will not recognise it,” said Jayne, who [...]
Kilde: moss-avis.no, Tekst: Jon Gran
Lettet MS-syke Susan Lauvik fra Larkollen ble torsdag operert på en klinikk i Polen. Nå håper hun å se slutten på sykdommen hun har hatt i 36 år. foto terje holm (Foto: Terje Holm)
Torsdag ble MS-syke Susan Lauvik (66) fra Larkollen operert på en klinikk i Krakow i Polen. Nå øyner hun endelig bedring.
Mannen min sier jeg løfter benet høyere enn før, men jeg velger nå å se ting litt an før jeg tør å kjenne etter om jeg virkelig er blitt bedre. Jeg har ikke våget å reise meg ennå, og regner med [...]
Kilde: Hanna Sommerstad, Moss Avis
Modig MS-syke Susan Lauvik (66) har vært syk i 36 år. Nå reiser hun til Polen på eget initiativ for å få utført et radikalt inngrep. Norske leger er svært skeptiske.
Foto: Terje Holm
Susan Lauvik fra Larkollen har hatt diagnosen multippel sklerose (MS) i 36 år. Til tross for motstand fra norske nevrologer, reiser hun i dag til Polen for å få hjelp.
I Polen skal hun få gjort et radikalt inngrep som kan forandre livet hennes. Her er hennes historie:
Larkollen, mandag 19. juli 2010: 66 år gamle Susan Lauvik sitter foran pc-en. Hun viser oss et videoklipp [...]
Source: Drew Halley, Singularityhub.com
For years, scientists have struggled to understand why the immune systems of multiple sclerosis patients attack their own bodies. With such a debilitating disease, a simple cause – and a simple cure – might seem too good to be true. In the past we’ve been covering new developments in the work of Dr. Paolo Zamboni, which suggests that a commonplace surgery might be enough to halt damage to patients’ immune systems. The so-called “liberation procedure” is gaining steam, causing controversy, and (most recently) attracting funding to investigate what could be a major step towards curing MS.
For those who [...]
Source: Andrew Fleming, Burnaby Now
By Andrew Fleming, Burnaby Now July 10, 2010
The 39-year-old Burnaby woman was diagnosed with multiple sclerosis (MS) in 1997 and now spends much of her time in a wheelchair. She is travelling south this week with the hope that a new experimental surgery currently not available in Canada will delay the advance of the debilitating disorder.
“The heat really affects me, so going to Mexico at this time of year was not really my first choice, but the wait list at some of these places is just crazy,” said Thompson. “I saw this opportunity, and I jumped [...]
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