Pages: English

MS-pasient ble bedre, leger sier nei

Kilde: www.smp.no, Inger Otterlei

– Jeg kan bare fortelle om mine erfaringer. Etter behandlingen føler jeg meg som et annet menneske. Jeg kunne gjerne gjort det igjen, sier Corrado Genta som ble rammet av multippel sklerose for 19 år siden. Før sykdommen rammet, var han pianist, men han kan fortsatt prestere vakkert pianospill, sjøl om pianisten ikke er fornøyd. Foto: Nils Harald Ånstad – Jeg har merkbar bedring etter behandlingen i Tyskland. Etterpå dro vi på julemarked i Frankfurt, var på italiensk restaurant og hadde fullt kjør i fem timer. Slikt var jeg ikke i stand til før inngrepet, [...]

CCSVI Clinic Offices Burglarized

Dec 27, 2010. Source: http://ccsviclinic.ca

After several weeks of escalating harassment and threats, ‘opposing interests’ may have added break, enter and theft to their disruptive strategy. The representative offices of CCSVI Clinic in Winnipeg were broken into and burgled over the Christmas break. The incident is currently under investigation by the Winnipeg Police Service.

CCSVI Clinic has been the recent target of a Facebook smear campaign by a certain group of Facebook bloggers, the intent of which seems to be to discredit the organization even in light of what they know to not be true. They have made outrageous claims [...]

CCSVI.nl: Exclusive interview with prof. dr. Zamboni

Exclusive interview with prof. dr. Zamboni at the XXIV Annual Meeting of the European Society for Vascular Surgery, Amsterdam, September the 18th 2010. Prof. dr. Zamboni spoke about CCSVI for an international audience of vascular surgeons. This interview was held after his presentation during lunch break.

ccsvi.nl interview part 1( of 2):

ccsvi.nl interview part 2( of 2):

Breakthrough Surgery Hope For MS Sufferer

“I just want to dream again. I don’t dream anymore,” Teresa Lloyd

Wednesday, 20 October, 2010 12:34 PM, Source: elystandard.co.uk

Teresa Lloyd wants to dream again. The 46-year-old mother-of-three has Multiple Sclerosis and the debilitating disease has robbed her of dreams and aspirations for the future. She mitigates the pain and overwhelming tiredness by managing her energy levels to carry out daily tasks and provide quality time for her family. She knows a wonder drug in her lifetime is unlikely, 
but after 10 years of 
worrying about what 
the future might hold
she has finally been 
given hope of staying 
 in control [...]

Golden State Gamble

Published: October 21, 2010 3:00 PM , Source: bclocalnews.com
Mike O’Reilly’s feet are numb.

He’s also losing feeling in both legs.

The Kamloops resident can feel the scourge of multiple sclerosis slowly taking over his body. 

Next week, O’Reilly will fly to a clinic in California for a new, but controversial, treatment, in a bid to alleviating symptoms of his disease.

“I’m not willing to let the symptoms get worse,” O’Reilly told KTW. “That’s not the lifestyle I choose to live.”

The business-development specialist with Venture Kamloops is going to be one of the first in North America to plunk down $13,000 to a have a [...]

Bulgarian hospital offers treatment

Source: By Hannah Scissons, The StarPhoenix

Tokuda Hospital in Sofia, Bulgaria, has an operating room that staff call the “angel sector.”

Between four and seven liberation treatment procedures are performed on MS patients there every day, and at least a half-dozen Saskatchewan residents are among the 98 Canadians treated there as of the end of August.

One was Michelle Walsh, who underwent the procedure on July 15. When it was finished and she began to feel the warmth returning to her hands and feet — a common sensation reported by patients — she said thank you to the staff.

“They [...]

Liberation Treatment continues to create improvements

Source: David Willberg, www.sasklifestyles.com

Beth Wock says she has talked to about 30 people who have received the controversial Liberation Treatment.
And everyone she has spoken to who has undergone the procedure has noticed improvements, she said.
“The changes that we’ve experienced are the things other people can’t see,” said Wock.

The Estevan resident had the procedure in Mexico in July in an effort to combat multiple sclerosis (MS), and a condition known as chronic cerebro-spinal venous insufficiency (CCSVI), which often accompanies MS. Since then, Wock has witnessed changes in her life, while becoming a champion for the Liberation Treatment.

Wock said she has had [...]

Launch MS clinical trials immediately, researcher urges

Source: By Hannah Scissons, Saskatoon StarPhoenix

SASKATOON — Clinical trials of the controversial liberation treatment for multiple sclerosis should happen immediately, says a former University of Saskatchewan researcher who proposed an eerily similar theory more than a decade ago.

Bernhard Juurlink published a hypothesis in 1998 that MS is related to decreased blood flow in the brain and spinal cord.

“It was very difficult to get anyone interested in this idea — the idea was easily testable by, for example, looking for blood flow in white matter in MS patients,” Juurlink said in an interview this week. “I tried to first interest clinical [...]

Society of Interventional Radiology Supports Research for New M.S. Treatments

SOURCE Society of Interventional Radiology

Position Statement in September Journal of Vascular and Interventional Radiology Outlines Society’s Stance as It Actively Promotes and Expedites Needed Research, Recognizes Potential Value of Interventional Treatment Options for Vulnerable Patients

FAIRFAX, Va., Aug. 26 /PRNewswire-USNewswire/ — Recognizing that venous interventions may potentially play an important role in treating some patients who suffer from multiple sclerosis — an incurable, disabling disease — the Society of Interventional Radiology has issued a position statement indicating its support for high-quality clinical research to determine the safety and effectiveness of interventional M.S. treatments. SIR’s position statement is endorsed by the Canadian [...]

Dr Sclafani's view on German and Swedish studies on CCSVI (posted in ThisisMS forum)

by Ccsvi Transverse Myelitis on Wednesday, August 11, 2010 at 12:38pm

Dr Sclafani has kindly answered to the following question I posted him in thisisMS fourm:

Dear Dr Sclafani,

Have you read the German and Swedish studies re Chronic Cerebrospinal Venous Insufficiency commented in the Wall Street Journal?

http://online.wsj.com/article/SB10001424052748703787904575403160155710380.html

Did these studies use the doppler ultrasound with the right protocols?

Rox

_____________________

Dr Sclafani’s response

11 August, 2010

It is regretful that Drs. Doepp and co-authors’ attempt to reproduce Professor Zamboni’s discovery of a link between multiple sclerosis and disturbance of the outflow veins of the brain and spine has been unsuccessful.

It is particularly unfortunate that the authors’ misunderstanding of [...]